From Library Journal
In the United States, nearly 3000 children a year are born with neural tube defects. Of these, about half have myelomeningocele, the most common form of spina bifida. Parents of these special children need a text that provides them with information in an easy-to-understand, nonfrightening, supportive way. With Children with Spina Bifida, Woodbine House once again proves its commitment to parents of children with special needs. Edited by Lutkenhoff (who coedited SPINAbilities: A Young Person's Guide to Spina Bifida), the book follows Woodbine House's well-established format of reader-friendly chapters written by noted professionals or fellow parents. Each chapter closes with insights from other parents. The chapters deal with issues parents will face, from prenatal diagnosis to adulthoodAlegal issues, education, health concerns, treatments, therapies, and causes. The extensive Resource Guide at the back of the book is remarkable, and is, by itself, well worth the cost of the book. This is an essential purchase for all parenting and consumer health collections.AKellyJo Houtz Griffin, Auburn, WA Copyright 1999 Reed Business Information, Inc.
From Parents' Choice®
Informative easy to read, this guide touches on all aspects of the development and care of children with Spina Bifida. Comprehensive reading list and resource guide are included. A 2000 Parents' Choice® Recommended winner.
Reviewed by Parents' Choice® 2000
Book Description
Parents of children with spina bifida require up-to-date information and empowering emotional support to meet the often intensive needs of their child. In one comprehensive volume, Children with Spina Bifida provides parents with both the facts and confidence to be proactive and positive about their child's condition and future. Written by an expert team of doctors, nurses, therapists, educators, and parents, and designed to address common questions and concerns parents have about their child's condition and development, this parents' guide discusses: What is spina bifida? What causes spina bifida? Prenatal diagnosis Coping with your emotions Why is neurosurgery necessary? Urologic concerns Bowel management Orthopedic concerns Physical therapy, braces, and casts Childhood development Parenting your child with spina bifida Nurturing an emotionally healthy child Education Legal rights and insurance Rounding out the book is a look toward the future with two inspiring chapters: one on adults with spina bifida, written by a physician with spina bifida; and the other by a young woman with spina bifida who writes about her journey toward independence.
Book Info
Reference, for parents and families, providing information, guidance, and support to help meet their child's intensive needs from birth through childhood. Covers symptoms, prenatal diagnosis, neurosurgery, bowel management, physical therapy, emotional health, education, causes, grief, development, parenting issues, and legal issues. Softcover.
From the Publisher
A review... "In the United States, nearly 3000 children a year are born with neural tube defects. Of these, about half have myelomeningocele, the most common form of spina bifida, Parents of these special children need a text that provides them with information in an easy-to-understand, nonfrightening, supportive way. With Children with Spina Bifida, Woodbine House once again proves its commitment to parents of children with special needs. Edited by Lutkenhoff (who coedited SPINAbilities: A Young Person's Guide to Spina Bifida), the book follows Woodbine House's well-established format of reader-friendly chapters written by noted professionals or fellow parents. Each chapter closes with insights from other parents. The chapters deal with issues parents will face, from prenatal diagnosis to adulthood-legal issues, education, health concerns, treatments, therapies, and causes. The extensive Resource Guide at the back of the book is remarkable, and is, by itself, well worth the coast of the book. This is an essential purchase for all parenting and consumer health collections." --Library Journal, December 1999 (starred review)
About the Author
Marlene Lutkenhoff, R.N., M.S.N., is the Service Coordinator for the Myelomeningocele Clinic at the Cincinnati Center for Developmental Disorders. She is the co-editor of SPINAbilities: A Young Person's Guide to Spina Bifida (Woodbine House, 1997)
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